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HOW TO SPOT THE EARLY SIGNS OF SMA

Select age range:

New SMA 0 -6 No BG
New SMA 6-18 No BG
Early signs of SMA are typically seen any time before 10 months, and up to 18 months of age1. If you feel
something isn't right with your baby, or your baby is displaying any of the following early signs of
SMA, trust your instincts and speak to your baby’s doctor.

WEAK LEGS & ARMS 1

  • Babies may appear to have floppy arms and legs, like they lack strength, with more noticeable weakness in their legs.3,4 They may have difficulty pushing up to their elbows and maintaining the position while lying on their tummy. They may also show slow, fatigued movements when trying to reach or grab toys. When held, babies may struggle to support themselves using their legs.4

STRUGGLES TO SIT UNSUPPORTED 3,4

  • Babies may struggle to sit still for extended periods and may lean forward or to one side. 2-4 Initially, this lean may be slight, but as they continue to sit, they may find it increasingly challenging and require further assistance to maintain the position.4

CAN'T ROLL OVER 4

  • Babies may rock from side-to-side but struggle to roll fully onto their side or tummy when lying on their back. Over time, these movements may become even increasingly difficult for them.4

SHAKING HANDS 3

  • Look out for small tremors or shakes in the fingers or hands when your baby holds their arms out. 3 The shaking may be subtle and challenging to notice.
     

SHAKING HANDS

SLOW/LOST PHYSICAL DEVELOPMENT 2,3

  • Babies may be slow to achieve developmental milestones such as sitting, standing, or walking without support. 2-4 Although they may reach these milestones, they may lose the ability to do so later.4
     

SLOW/LOST PHYSICAL DEVELOPMENT
Remember, even babies with SMA remain alert, responsive and smiley. They'll appear happy, not in distress, which makes SMA signs less obvious. If you notice any of the above symptoms, do not hesitate to reach out to your baby's doctor.
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References

  1. Pera MC, et al. PLoS One. 2020;15(3):e0230677.  
  2. Kolb SJ and Kissel JT. Neurol Clin. 2015;33(4):831–46.  
  3. Wang CH, et al. J Child Neurol. 2007;22(8):1027–49.  
  4. Prior TW, Leach ME, Finanger E. Spinal Muscular Atrophy. 2000 Feb 24 [Updated 2019 Nov 14]. In: Adam MP, Ardinger HH, Pagon RA, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993–2020.